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My Diary
Every day I tell my daddy about my
treatment, and he publishes it on my site. I
am not able to write yet. But I like to draw
and mould. Below you can see my pictures and
what I have moulded.
December 13,
2005
The first day
in the hospital. Ksusha is very much afraid
of tests which are constantly being carried
out. The girl does not let her mum go
anywhere.
December 14,
2005
A puncture research of the bone marrow has
been done. The aplastic anemia is suspected.
Ksusha is transferred to the isolation ward
of the blood cancer chemotherapy department.
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December 20, 2005
The bone marrow was taken from the breast
(right and left crests ileac bones) for
research. This was done under narcosis.
Therefore it did not hurt much.
December 29,
2005
It became known
that the younger little sister cannot be the
donor of the bone marrow.
January 5,
2006
The temperature is up to 40 degrees,
weakness grows.
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January 6, 2006
The condition of the girl worsens
progressively. The temperature is
practically not reduced.
January 7, 2006
Besides the high
temperature pains in a stomach have
appeared. Peritonitis is suspected. Transfer
into the intensive care unit is being
considered. The stomach pains have decreased
by the evening, the temperature has
decreased a little also.
January 9, 2006
The condition improves.
The appetite is better but Ksusha is not
allowed to eat everything she likes. The
temperature rises seldom.
January 12, 2006
Condition is quite stable. Rare rises of
temperature up to 38 degrees.
January 15,
2006
The temperature did not rise above 37
degrees. Ksusha was allowed to eat
everything but not too much.
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January 17, 2006
Chemotherapy
was planned to start tomorrow but the
temperature has risen to above 38 degrees in
the evening and lasted all night. I’m
suffering from the severe cough.
Thrombocytes have been transfused
January 20, 2006
The
temperature is above 38 degrees for the 3rd
day. Antibiotics cause a severe allergy.
Chemotherapy is postponed indefinitely.
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January 22, 2006
Thanks God!
The temperature has fallen to 37 degrees.
Skin allergy has reduced. We can smile
again! The appetite is good too!
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January 24, 2006
Temperature is
between 37.6 and 37.8, sometimes it is falls
to normal. We’ve applied for disability
status. Ksusha is learning needlework. She
is quite good at it. Ksusha misses home and
her little sister.
January 26, 2006
The course of
immunosuppression has begun. Girl's
condition so far is
stable. The course is
expected to cause blood parameters to
degrade even
further. Donors, where are you?
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January 29, 2006
Ksusha is half way
through the course of Anti-lymphocyte
Globulin (ALG).
Four more infusions are still to go. Other
treatments are planned after
that. The ALG treatment
has not caused any complications yet.
Temperature is
normal.
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January 31, 2006
Severe vomiting started
towards the evening, after another ALG
infusion and blood
transfusion. It continued through the night.
The temperature has not
risen. The girl feels
very weak and queasy.
February 1, 2006
Vomiting has stopped in
the morning. Ksusha has been asleep during
the day. She is
still very weak. The plan is to insert
subclavicelar catheter and
continue ALG treatment
tomorrow. |
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February 4, 2006
ALG course has been
completed. Almost a month of hormone therapy
is ahead.
February 8, 2006
Two more weeks of hormone
therapy are still to go. Blood pressure is
going up and down sometimes. Weakness is causing
afternoon naps. Condition is OK
in general. Doctors allowed to go outside
for a walk but freezing
temperature keep me in the isolation ward.
February 23, 2006
There are two more days
of hormone therapy left. After that we need
to wait for the
results. I'm going for a walk every day. The
condition is stable.
March 4, 2006
Thrombocyte transfusion
was performed on Wednesday. Percentage of
thrombocytes has
increased (greater than zero). However,
leukocytes level
has dropped significantly (3000 in the last
blood test). Haemoglobin level
is decreasing as well but
not as rapidly (currently 70g/l). We're
looking for ways
to get treatment abroad. We need to <a>raise
funds</a> for such
treatment.
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